Thursday, January 28, 2010

My turn.

It's been a long time since I have had a minute to sit still and think about my blog and all that we have seen and been through these past few months. Mom is doing great this past monday at an appointment she showed me her chest and her scars are barely visible already and her new breast have a great size and shape. She will be getting her permanent boobies in later in Feb. I can't believe how fast time has gone by and how amazing she feels and looks. God has truly blessed her body and soul and has really given her so many miracles and moments for her to even share her faith through her experience.

Some of you may have seen that I have recently had some testing done. I made a decision after walking through everything with mom to have some things done for myself. I have started the genetic testing process. I may or may not find out anything different from what we already know. However, as we have done the tree for our family history we have found that there are 5 people who have died or been diagnosed with ovarian cancer. This shows that their is obviously some sort of mutation in the gene whether or not it shows up on the Braca testing it still has a pattern and is following every generation of the family.

Knowing this and knowing I am not planning to have more children I have decided to have an elective surgery and have my ovaries and uterus removed. At this time it will most likely happen in the next month or so. I am very at peace with this decision and I am also ready to get it done and begin moving through the recovery process and on to the other side of female life. There are some pretty serious things I have to go through and also some side effects I am not excited about but I do believe this is the right decision for me.

After my recovery I will have some other consultations and will possibly under go some elective breast surgery. I do not believe at this time I will go through with the mastectomy unless in the genetic testing we find any changes to the gene mutation.

I continue to write these blogs and share in detail because you need to know your family history and your risk. You need to be your own advocate no one else is going to do it for you. My experience with this disease is that those who are getting into high risk studies, testing or seeing doctors who are involved in research these are the women who are surviving these battles and winning their fight. Just going once a year to a check up is NOT enough you have to do more you have to keep score of your body and anything that develops or changes. You have to write it down and You HAVE to go back as far as you can and find out what you can about aunts, cousins, grandparents etc. If your adopted then you HAVE to have genetic testing that is the only way in which to help yourself and your children know about early detection.

"Lord thank you for my friends and family and for everyone who is and will continue to pray for us as we walk this journey."

Mama Huff